We know that often the best advice comes from chatting to other families. Whizz-Kidz is passionate about bringing families together in an online and offline community so parents don't ever have to feel alone. You can sign up to our Parents Network here.
Mandy is mum to 17 year old Hannah who represents the West Midlands on Whizz-Kidz’s Kidz Board and this is her story.
‘Hannah was my first child, born fit and well with no issues. I returned to work full time and was promoted in the police service. When Hannah was one she became unwell and after numerous visits to the doctors over a few weeks, her condition deteriorated and she was admitted firstly to our local hospital and then transferred to Birmingham Children's Hospital.
‘I found out that Hannah had TB meningitis and she then had a stroke as a result of it. Hannah was in a coma for a month on the Intensive Treatment Unit and honestly, I was uncertain if she would pull through. Thankfully she did, although she was very unwell for months and I didn’t know what difficulties Hannah would be left with.
‘Today, Hannah has a severe weakness, hemiplegia down her right hand side. Hannah is able to walk short distances with the aid of a stick and because she can do a limited amount of walking, Dudley Wheelchair Service wouldn’t give her a powered chair. Instead she was issued with a manual chair which she could not move by herself. Hannah couldn’t join in properly with other kids, she always had to have an adult around and that’s when we applied to Whizz-Kidz.
‘The equipment provided by Whizz-Kidz has made our family’s life easier. Hannah is a lot more independent and this means less stress for me and more time to do other stuff. Through Whizz-Kidz’s services we have also met other families which has been really helpful and makes me feel like I’m not alone in my struggle to get what is right for my child.
‘You hear so much from chatting to other parents and getting to know them. Some of the hardest parts of being a mum is knowing how to support your child during the transition periods, primary to secondary school, whether you go to a mainstream school or not. Really it would be helpful to know what you are entitled to at each stage of your child’s life.
‘I’m pleased that Whizz-Kidz has launched a Parents Network. Being a part of Whizz-Kidz makes you feel you are part of a wider family with your child's interests at heart.’
Mandy has shared her story as part of Whizz-Kidz's new Parents Network. Our online network is a place for parents of wheelchair users to get information and share advice and experiences. Sign up to our Parents Network.