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Nusaybah's story - how the right wheelchair makes life-changing differences

Having been diagnosed with spinal cord conditions affecting her mobility, it was important that Nusaybah, 3, had a wheelchair that was light and made it easy for her to move around on her own. Last year, Whizz-Kidz were able to fit her with just the right one.

Whizz-Kidz Team
Author
Whizz-Kidz Team

“Nusaybah is now able to move from room to room at home, she can open drawers and get things that she wants instead of asking me for them. When she visits family, she can get around and enjoy time with her big brother and sister and all her cousins. They are also looking forward to taking her out when she is a little older.”

Nusaybah is three-years old and a tenacious, and kind little girl. She lives with her family in Birmingham, and like most children her age, she loves watching cartoons, painting and playing. Nusaybah was born with spina bifida and hydrocephalus, which affect her mobility and mean that she cannot move around freely on her own. Amera, Nusaybah’s mum, wanted her to be able to attend nursery and independently join in with the other children as well as enjoy family time with her siblings and cousins – something that wasn’t possible with the previous wheelchair she had.

As well as undergoing extensive operations because of her spinal conditions, Nusaybah also has physiotherapy six times each day. She needs to be as comfortable as possible when moving around and doing her exercises. At home, she used to get around mostly by crawling, and the wheelchair she had was too heavy and bulky, meaning she could not push herself and had no independence whilst out or when visiting family and friends.

In January 2021, Amera got in touch with Whizz-Kidz after being recommended the charity by another mum. Nusaybah was assessed for her needs and got to test different wheelchairs before receiving the bespoke wheelchair she has now. This new lightweight wheelchair allows her to be active and express herself more fully. Amera knew that the right chair needed to be lightweight and compact so that Nusaybah could control it and self-propel herself, giving her the independence to be active and play without relying on anyone else.

We are truly grateful to Whizz-Kidz for the wheelchair that Nusaybah has. Seeing her doing 360 degrees round and round bought it home just how happy she is with her chair and the independence it has given her.

Attending nursery was an essential step before starting primary school so Nusaybah could socialise with other children, enjoy the activities that other children her age do and prepare her for primary school. The other option available would have been to go from being with a child-minder straight into primary school, which Amera knew would have been very intimidating.

Amera said: “Nusaybah is now able to move from room to room at home, she can open drawers and get things that she wants instead of asking me for them. When she visits family, she can get around and enjoy time with her big brother and sister and all her cousins. They are also looking forward to taking her out when she is a little older.”

Nusaybah is one of around 75,000 young people in the UK that need a wheelchair to be mobile. In our new strategy, Empowering Young Wheelchair Users: Our Strategy 2022:2024, we set out aims to double the number of young people we support with wheelchairs by 2024.

Find out more and see how you can help be the change for young wheelchair users here